Seqster connects Alzheimer’s patients and caregivers
March 27, 2018
San Diego start-up Seqster is providing the George G Glenner Alzheimer's family centres with access to its healthcare data platform to coordinate care and decision-making.
The platform lets individuals aggregate and control all their available health information, including electronic medical records, wearables, ancestry and genomics data, within moments of signing up and with full transparency for data usage. Individuals and their families can navigate healthcare treatment and share personal and family health data with providers, innovators and researchers, on their own terms.
The platform connects to more than 1000 healthcare providers comprised of more than 2000 hospitals and clinics across the USA, with additional providers coming online daily.
"In building a first-of-its-kind health data platform, our aim was to empower individuals to take full ownership of all of their health data, understand it better and share it with others on their own terms," said Ardy Arianpour, CEO and co-founder of Seqster. "Having personally experienced the impact of Alzheimer's on families, I see an immediate need for better ways to support day-to-day decisions as well as a longer term need to preserve and pass on valuable data to future generations for breakthrough discoveries. We are excited to work with Glenner centres to make rich, actionable data a seamless part of how their participants and families get care."
According to the Alzheimer's Association, more than five million people are diagnosed with Alzheimer's disease in the USA. In San Diego alone, 65,000 people live with Alzheimer's and more than 200,000 San Diegans are caring for a loved one with Alzheimer's. The disease is the third leading cause of death in San Diego.
The mission of the Glenner centres is to provide high-quality adult day care and support services to families affected by Alzheimer's, through day care programmes, family support, case management, crisis intervention, and family and community education, advocacy and information.
Through Seqster, Glenner offers its participants and families an additional benefit and service that improves how they navigate their care experience, including instant access to medical record data alongside fitness, wellness, genomics and ancestry data. This information can be easily shared with family members, giving caregivers an easier way to manage care coordination and inform treatment decisions. Essentially, it helps families answer the question "what do I do now?" following an initial diagnosis of a loved one as well as effectively navigate changes in a participant's health status and contribute to breakthrough research and discovery efforts.
In addition to immediate access to an integrated view of all available health data, participants and families benefit from Seqster's HealthTrust programme. This lets individuals establish a legal asset from their health data and entrust a family member or members with access to their health record, much like a person executes a will. This allows individuals to pass their health data onto family for insights and information for generations to come.
"We are proud to work with Seqster to securely and efficiently deliver critical health data into the hands of our participants and their families," said Scott Tarde, chief executive officer of the George G Glenner Alzheimer's family centres. "The opportunity to be the first organisation to offer Seqster's solution to our customers is consistent with our mission to bring them the best and most innovative care."
The partnership comes at a time when Seqster makes its recent corporate debut. The company is focused on building partnerships with healthcare organisations and patient populations, with plans to make a direct-to-consumer offering available later this year.
Launched in February 2018, Seqster is privately held and headquartered in San Diego.